So I think we have figured out why Kathryn has been a little feisty lately. Dr. Mena said that they have found some bleeding in the lining of her stomach which is causing her to have a little irritation. He thinks it is caused by either the steroids or the feeding tube, so they have started her on a baby version of Zantac. He thinks it is fixable, and he doesn't seem worried about her, but getting the Zantac going should help her relax!! We think that is part of the cause of not being able to advance feedings, her stagnant weight gain (she dropped to 2 lbs, 15 ozs last night), etc. Hopefully this can settle her down and get her started back on a great track!
She is back to full Neocate feedings until this settles down.
Today was one of those days where I felt the "Why Me" moments. I cried a lot today and I'm not even sure why, except exhaustion and worry. I keep trying to focus on the quote that God doesn't call the equipped, but he equips the called. I certainly don't feel equipped to do half the things we are going through right now, but I know that God will give us what we need when we need it!
Our support system through all of this has been amazing. Church friends, nurses, and coworkers have been wonderfully supportive. And of course family has been available at all hours to help pitch in, keep Maddie, and provide the strength we need to get through.
Please pray for Kathryn.