So, really at this point there is no definitive news. Sunday night we checked in to the ER around 9 pm and were admitted to a room at Children's hospital by 1 am. Greg headed on home and I stayed with Kathryn. Her next bottle was at 2 am, so I just stayed awake and fell asleep around 2:45 planning to sleep til 6:00 am for the next bottle, but the lab tech woke Kathryn and I at about 5 am for bloodwork. Yesterday was filled with numerous tests like bloodwork, x rays, etc. They tried three times to get a urine sample and the catheter would not go in. She was so sore after all of the attempts that she was cranky at a simple diaper change since we had to use wipes. I think she was stuck around 9-10 times yesterday for tests, IV's and such. She was as high yesterday as 2 1/2 liters of oxygen (and she had been on 1/2 liter at home). She seemed to do great through the night last night. Greg headed home again and I stayed with Kathryn. It seemed like someone came in to our room about every hour, so once again no sleep for she and I. Her oxygen sats did great last night but around 5 am, she started to alarm again. As of this morning, they still could not figure out what was going on with her, so they started more tests. They have done blood cultures to see if there is an infection, CBC counts, urinalysis to determine if there is infection, started her on antibiotics (Ceftazidime) in case there is an infection, nasal swabs (not sure why), and a spinal tap. Not all of the results are back yet, but they have told us that they have not found anything just yet. She is still requiring increased oxygen, but so far that is the only sign of difficulties. I still defer that there has to be a reason for increased oxygen and I keep insisting that they find the reason.
I am at Children's Harbor right now. It's a place for families to get a break. I am heading off to one of the nap rooms in a moment to try to catch an hour of sleep for the first time since Saturday night. Greg and Madelyn are with Kathryn. Please pray for wisdom for the doctors to figure out what is going on and for some much needed rest.